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Tuesday, February 7, 2017

A Year Since Aubin's Seizure

It has been a whole year since Aubin had her febrile seizure. A whole year. This morning I woke up and as I was getting myself ready I hesitantly looked at my timehop knowing the pictures that were coming. My poor tiny, frail, red faced baby doll all strapped in an ambulance. You can read the whole story here as even writing about it gives me the uneasy belly.


Since last year, I have become the mama bear about fevers and medicine for babies. Anytime she feels remotely warm she gets Motrin. We cycle Motrin and Tylenol and I truly don’t feel like I am “ruining her liver” or “making her dependent” as some people see it. We believe that she has had one other seizure since last year but cannot be sure as it was in the middle of the night and we did not witness it. That was a very hard event to swallow knowing that we were not there for her during that scary time.

Here is what I have learned about that situation though. Know the Emergency Room that you will be going to in case of well, an emergency. We didn’t know, and we could have saved an hour or so by having that information on hand instead of me calling BCBS and trying to figure out where to go. I feel a lot of mommy guilt for not knowing. Sounds super easy but you wouldn’t believe the people that don’t know where to go!! I mean we didn’t! This leads to trusting yourself and your mom/dad gut as well. I knew we needed to go to the ER but we waited it out and it was the wrong decision. Trust your instincts.

Finally, Aubin has been on the up and up for the last 6 or so months (knock on wood). We still do breathing treatments twice a day. She is vivacious, loud and amazing!! She knows how to count to 20, can say her alphabet (h-i-j-k- ELMO-p), talks like a grown up and is working on potty training.

I cannot image our lives without that beautiful baby!! Happy ambulance ride day girlfriend—I hope we never have to experience that ever again!

Do great things
Linds